Saturday, June 25, 2011

Legendary Lifeguard - Leroy Colombo

Having spent the past week training new lifeguards to our program, I can't resist sharing here the amazing story of a deaf  lifeguard I came across in recent months.

Leroy Colombo was a well known resident of Galveston, Texas. Born in 1905 to Italian immigrants, Leroy contracted spinal meningitis at age 7 and lost his hearing and the use of his legs. His brothers helped him regain his ability to walk, apparently by dragging him in the alley behind their house and perhaps also with swimming lessons. Deemed "ineducable", he attended the Texas School for the Deaf  in Austin for six years -where he was rarely seen away from the pool, breaking records for speed and distance. He was also an avid surfer, one of the first in Galveston. By age 18 he qualified to become an official lifeguard by swimming for 3 hours continuously, though he had been been saving lives on the beach there since he was 12 years old! Leroy singularly dedicated himself to patrolling the beach and watching out for people. Over the course of his life he saved over 1000 lives both on land and in the water.

Some accounts refer to Leroy as deaf and mute, others say he could lip read well and speak clearly. When someone strayed too far from shore he was reported to have blown his whistle and beaten his chest vigorously to get the swimmer's attention. He was well known along the beach as a friendly guy with a sense of humor, according to Donald Mize who researched Leroy's life and recently convinced the city council to name a street after their legendary lifeguard.

Stories about Leroy's swimming and lifesaving feats were featured in the Galveston Daily News over his life though it also seems many of his rescues went unacknowledged. He was a superb long distance swimmer and won many endurance races. In 1927 he completed a 15 mile swim in the Gulf of Mexico in 11.5 hours - only his brother also finished, 3 hours behind Leroy - all the other swimmer dropped out due to muscle cramps and jellyfish stings. Leroy finished a 10 mile race with one hand in Mississippi River when his shoulder was dislocated after 8 miles. In perhaps his most dramatic rescue, he swam beneath burning oil to rescue two crewmen from a tugboat on fire.

In the last year of his life, at age 61, Leroy saved 38 people. After his death in 1974, the City of Galveston put up a plaque in his honor. Pictures of him can be found at the lifeguard stations along the beach he patrolled and there an annual fundraiser is named after him. The Texas School for the Deaf built a new swim center which now bears his name.

What a remarkable American hero - more people should know about Leroy Colombo!

Monday, June 20, 2011

Adaptive Recreation and Summer Fun is Here!

Summer has officially arrived! A broad spectrum of adaptive recreation opportunities is available throughout New England. Here's a sampling of just some of the fun you don't want to miss out on:

I have to toot our own program horn first: DCR's Universal Access Program is already in action with hiking this month. Our statewide trail outing program, facilitated by Stavros Outdoor Access, visits parks across Massachusetts from the coast to the Berkshires with plenty of educational themes and fun activities mixed in. Check the Summer Program page to the right in the sidebar to see when we'll be at a park near you! Sailing on the Charles River is underway daily with Community Boating. In July we'll be up and running everyday of the week with a program somewhere - kayaking, canoeing, cycling and rowing all take place on weekdays!



Next - Northeast Passage! Based in Durham, NH, this long-standing barrier-free recreation organization expands outward into Maine and Massachusetts as well as covering the ground in New Hampshire this summer. If you want to play golf, tennis, cycle, kayak, or waterski, give them a call. They also rent adaptive recreation gear for you to use on your own! Everyone who works there is a certified therapeutic recreation specialist so all the fun they provide comes with a great deal of expertise. Their full summer season culminates in September with a 100-mile ride through the White Mountains for those who seek an athletic challenge.

Accessible kayaking opportunities in the Boston area have taken a leap forward this year! Outdoor Recreation of Hopkinton with the help of Waypoint Adventure is offering adaptive programs at 2 new locations besides Hopkinton  - Spot Pond in Middlesex Fells Reservation and UMASS Boston. Check these out at their new website: Boating in Boston.

In the Pioneer Valley, a wonderful program has been gaining momentum on the Norwottuck Rail Trail for a few years now. All Out Adventures provides Cycling for Seniors! I glimpse this program in action while passing by and it is great to see people 60 years and older enjoying a wide variety of supportive bikes. AOA also offers Kayaking for Seniors. It's great to see more focused recreation activities available now for this age group!

A little bit of rain did not deter these hikers from a recent
exploration of Mt. Tom State Reservation in Holyoke!
And don't forget DCR's REC CONNECT program - if you live in Boston, Worcester, or Holyoke, and surrounding areas, we can help you meet your recreation dreams and goals and build your skills in a wide variety of activities. Check out our facebook page linked above to see what's going on and give Heidi a call at 413-577-3840 to find out more! We are looking for mentors, volunteers, and more people who just want to have fun! We also need your input: What activity would you like to see us turn into an adaptive recreation program next? Please vote on the sidebar poll and talk to Heidi!

There's more - look around here and stay tuned!

Saturday, June 11, 2011

Wheelchair Accessible Cape Cod!


Crosby Landing beach on the bayside of Nickerson State
Park. A beach wheelchair is available with advance notice.
Planning a visit to scenic Cape Cod? If you need wheelchair access in order to consider Massachusetts' premiere vacation destination, here's what you need to know!


Basic Services: You can cover a lot of planning basics with one stop on-line research at Cape Cod Days featuring accessible travel planning. This site is being expanded in 2020 beyond the excellent information on lodging and beaches it already provides. (This paragraph updated in 2020.)

Accessible camping at Nickerson State Park.
Camping:  Two state parks offer wheelchair accessible yurt camping - Nickerson State Park in Brewster and Shawme Crowell State Park in Sandwich - both are primarily inland forested parks, a nice reprieve from the hot sun. Yurts are built - in tents so no need to bring your own! They sleep either four or six people and feature beds, chairs and a table, with a deck outside and a raised fire circle with cooking grate. Nickerson features several freshwater ponds and a lot of shaded trails. The Cape Cod Rail Trail passes through at the front entrance. Nickerson also has a bay side beach that is quite lovely, and park staff will deliver a beach wheelchair if you like. The park is wildly popular with long lines to get in during the summer - don't plan to arrive without a reservation. If you prefer a quieter park, Shawme Crowell is a fantastic alternative, without ponds, trails or beach - a lovely base from which to explore outward. Reservations start six months in advance via Reserve America so its late in the game for this year, but always worth a check just in case, with availability most likely at Shawme Crowell.

Beaches: Many beaches feature beach wheelchairs from town beaches to the National Seashore. Use the CCDAD to look up beaches in towns you plan to visit.

Adaptive cycling along the Cape Cod Rail Trail.
Cycling: There are choices! The 22 mile long Cape Cod Rail Trail runs through six towns from Dennis to Wellfleet in the mid-Cape area. You can rent a DCR touring style handcycle at Rail Trail Bike and Blade in Brewster near Nickerson State Park. On the upper Cape, the Shining Sea Bikeway travels almost 11 miles through woodlands, salt marshes, and along the seashore between Falmouth and Woods Hole. In Provincetown, the outermost tip of the Cape, a 5 mile Provincelands Loop through the dunes offers a hilly ride with extensions to beaches. Bike paths are generally great for wheelchair jaunts too!

CAPEAble Adventures has 6 of these wheelchair accessible
tents available for their camping programs.

Adventures: I just met Craig Bautz of CAPEAble Adventures at DCR's annual Adaptive Recreation Fair in Boston last weekend. What a nice guy! And he's got toys! CAPEAble offers organized adaptive recreation activities including cycling, golf, kayaking, curling and kite flying. They work with the Rehabilitation Hospital of the Cape and Islands (RHCI) and put together a Wounded Warriors Project Weekend each September. Craig uses a wheelchair himself and lives on the Cape, so he is a great resource!

Cape Cod is becoming more accessible over time and that is a nice thing to be observing!

Saturday, May 28, 2011

Adaptive Recreation Fair in Boston June 4th!

Now is the time and THIS IS THE EVENT to discover adaptive recreation opportunities in the Boston area and beyond! Come to Artesani Park along the Charles River on Saturday, June 4 from 10am - 3pm and enjoy a day in the park! Test ride all kinds of adaptive bicycles for adults and kids. Stroll the green, meet adaptive recreation providers and see their equipment on display! Take a short hike in a mountain wheelchair or with a sighted guide! There are myriad possibilities for summer fun to be found here, so don't miss out! This is your chance to do one-stop shopping, meet friendly people and make new connections!

Participating organizations include:

Ability Plus
All Out Adventures
Bike-on
Blue Frog Party
CapeAble Adventures
Community Boating
DCR Universal Access Program
New England Disabled Sports
Northeast Passage
Outdoor Recreation of Hopkinton
Piers Park Sailing
Spaulding Rehab
Stavros Outdoor Access
U.S. Paralympics
Waypoint Adventures

Equipment on display will include the Hippocampe, Trail Rider, a wheelchair accessible camping tent, a beach wheelchair, and a sailboat. Check the sidebar here for links to the organizations above.

Facepainting, craft activities, gentle hikes, letterboxing, and a quest offer additional enjoyment for all ages. Light refreshments and water will be available. Bring your own lunch and picnic on site! Bring your bathing suit if you want to cool off in the spray pool!

Artesani Park is located at 1234 Soldiers Field Road in Brighton. Call 617-626-1294 to pre-register. ASL interpreters will be on site. You can read about last year's event here! This is "not just any day in the park"!

Sunday, May 22, 2011

Set Sail in Boston!

I paid a visit to Community Boating in Boston on a gray day recently, to check out their brand new dock and catch a glimpse of their Universal Access Program in action. Wow! The new dock is fabulous - broad, spacious, clean, with a comfortable (and to code) grade from the boathouse to the boats. Most amazing of all, there is a designated slip for the adaptive sailboats. New dock, new program, same great price!

Community Boating (CBI) has the ideal location for learning to sail in Boston, right on the Esplanade and the Charles River, where the tide and commercial traffic pose no issue. Kids and people with disabilities are a high priority for this sailing organization now in its 8th decade of operation. So is affordability - membership dues are still $1 for the season - though of course donations are always welcome!

Saturday, May 14, 2011

Everyone Rides in the Berkshires


A therapist jogs alongside during a test ride on a
recumbent trike along the scenic Cheshire Reservior.
The rain held off for a special event in far western Massachusetts today - the kickoff of the new Everyone Rides program, a community collaborative project which will make a fleet of adaptive bicycles available for people with disabilities to use free of charge on the Ashuwillticook Rail Trail.

The Ashuwillticook Rail Trail is my favorite rail trail in Massachusetts, traveling 11 miles from Adams to Pittsfield, passing along the Cheshire Reservoir at the base of Mt. Greylock. The adaptive bikes were purchased with money raised from an annual inclusive trialthlon event called Farnum's Challenge. Two local disability organizations, Ad Lib and UCP of Berkshire County, along with the Berkshire Bike Path Council , Mass DOT, and DCR, have worked together to obtain the bikes and develop a plan to make them available for independent use.

At today's event, interested riders met with a therapist to be custom fit to the right bike - a process that is required as part of the program. Once you have been properly fit to the right bike (interchangable seating allows for more personalized options), you can call to make a reservation to ride. All inquiries and reservations can be made to Dawn Matthews of UCP at 413-442-1562  ext. 24 or via dmatthews@ucpberkshires.org

The introductory array of new bikes on display today was chosen to help provide access to the trail for a wide variety of users including adults and children. Four adult bikes by AmTryke included a handcycle, a conventional trike, a recumbent trike, and a trike with assistive supports. There were also four trikes for small kids designed to meet various needs and abilities. A Duet wheelchair tandem will also join the fleet soon, allowing for a passive rider to enjoy the front ride while being pedaled by a driver behind. A new building along the rail trail owned by DCR will house the bikes and has space for future additions to the fleet.

Merle Ferber - an inspirational force for access
in the Berkshires.
Merle Ferber, longtime disability rights activist in the Berkshires, received an award today for her role in helping to develop the Farnum's Challenge event and carry forward the vision to create Everyone Rides. "There are so many people out there who want to help us," she told the crowd, "Now we have bikes in our own community we can use to ride our local rail trail. Thanks to everyone who helped make this possible, and don't forget to wear your bike helmet when you ride!"

This year's Farnum's Challenge will be held on July 24. Each team must have at least one member with a disability. To participate in this popular event and support adaptive cycling, contact Ad Lib Independent Living Center at 413-443-4338 or UCP at 413-442-1562.

Thursday, May 5, 2011

Spring Into Cycling!

Adaptive cycling opportunities continue to grow throughout New England! Here's what I know is happening this spring - please add additional information via the comment box!

Northeast Passage has an Introductory Clinic indoors this Saturday, May 7, in Durham, NH. For $20 you can try out several brands and styles with individualized attention and fitting to find out what works best for you. Brands include Top End, Quickie, Hase, Greenspeed, Trailmate, and Freedom Concepts. There is a morning and an afternoon session.  Call Northeast Passage at 603-862-0070 or email northeast.passage@unh.edu to sign up. They will have a similar clinic on Cape Cad May 14 and have organized rides scheduled June 18 and 19 at Acadia National Park in Maine and June 27 on the Windham Rail Trail in New Hampshire.

Also on May 14 in the Berkshires, Bay State Bike Week will kick off with a new opportunity called Everyone Rides on the Ashuwillticook Rail Trail in Cheshire, MA from 10am to 12 noon. Sponsored by several organizations including the Berkshire Bike Path Council and local disability groups, Everyone Rides will make several styles of adaptive bicycles available for use throughout the biking season by request with support from the Department of Conservation and Recreation. Come on May 14 to be fitted to bikes by a therapist, participate in a group ride and find out more! Contact Dawn Matthews at 413-442-1562 x 24 or email dmatthews@ucpberkshire.org

On May 16, the Asperger's Association of New England, (AANE) is offering at Bike Riding 101 for Parents workshop in Watertown, MA (Boston) from 7-8:30pm. The presentation will help parents break down the complex process of riding a bike into manageable steps for children with Asperger Syndrome and related disabilities. There is a $40 fee for AANE members ($50 for non-members). For more information, including partial scholarships, or to register, call 617-393-3824 or email info@aane.org.

Coming up on Saturday June 4 is the DCR Universal Access Program Adaptive Recreation Fair at Artesani Park in Brighton (Boston), MA. Adaptive cycling is the primary recreation activity at this free annual event that runs from 10am - 3pm. Many styles of bikes will be on site and available for short test rides through the park along the Charles River. Call 617-626-1294 or 413-577-3840 to register in advance. All Out Adventures, Northeast Passage, Bike-on, and other cycling programs will be representing their bikes. This fair is a great place to find out about all kinds of recreation opportunities taking place in the greater Boston area and beyond this summer! Read about last year's event here to see what it is all about.

On June 11, from 9am - 12noon, the Sports Association of Gaylord Hospital will host a free Adaptive Cycling Clinic in Cheshire, CT - yet another opportunity to get individualized fitting to a wide selection of bikes. From 12:30 - 2:30pm, there will be Cycling Club Spring Ride along the Farmington Canal Greenway for those who already have their own bike. Bring a lunch if you are coming for both sessions. To participate you must register at 203-284-2772.

If you are shopping for an adaptive bike, check out Bike-on.com, based in Rhode Island. Not only do they sell the widest variety of adaptive cycles internationally, they offer an on-line community with listings by state in the U.S. for people who seek handcycle and trike riding companions and connections. Check out the All Out Adventures website for other relevant bikes not available via Bike-on. Handcyclists on the west coast may also want to look into Intrepid Cycles.

Since I've covered all but one New England state so far, I'll end by mentioning the Tandem Cycling Program offered by Vermont Adaptive Ski and Sports. They haven't yet posted their cycling schedule. Keep an eye on their website and facebook page if you are interested. They have a variety of tandems and offer rides on bike paths in Burlington, Castleton and Stowe in the summer. (And if you think I didn't give Maine good enough coverage here, contact Maine Handicapped Skiing to learn about their adaptive cycling program in Portland.) Happy riding!

Thursday, April 28, 2011

Celebrate the Season by Flying a Kite!

Anyone out there flying kites this spring? We are considering kite flying as a new activity for our REC Connect grant and are seeking information about accessible kite flying. If you have a disability and fly kites, we'd love to hear from you! If you are simply interested in kite flying, we'd love to know!

Kite flying is a colorful, inspiring activity that spans many cultures and dates far back into history. It can be enjoyed alone or with others, typically on an open field or beach where wind conditions are most likely to be ideal. Kite flying open us to the sky and celebrates spirit. The festive presence of kites is a cultural tradition in many places from Afghanistan to New Zealand.

Flying a kite can be as simple and affordable as buying one for $1 and launching it in a city park. Many specialty kites are available and stunt flying with kites on two or four lines has become increasingly popular.

Local clubs and regional organizations such as Kites Over New England (based in Billerica, MA) offer social events, lessons, demonstrations and events.  The American Kitefliers Association has established April as National Kite Flying Month and provides nationwide information. Kite flying aficionados (known as "kiters") may create fanciful homemade creations of substantial size that take as long as a year to build. Kite design has come a long way since I last flew one in my teens as I learned recently from this breathtaking Italian music video.

People with disabilities are engaging with this intriguing pursuit, yet information is scattered as to how and where to go about it. Searching the internet turns up people with disabilities of all kinds who fly kites, including people who are blind, have developmental disabilities, or use wheelchairs. I also found a fully inclusive kite flying events in Australia and India, plus a few examples of kite flying events as fundraisers for disability organizations, most notably one in Africa which promotes mental health and attracts an attendance of 20,000 people. For the more adventurous souls, kite flying can be used to power experiences on other equipment, including carts, surfboards, skateboards and more. Check out the Mobius Disability Kite School in England.

Kite flying in India at a festival.

If you are inspired to start flying kites, the best strategy seems to be to link up with a kiter, presumably through an organization like the ones above, or simply trying it on your own. Kite flying by people with disabilities and others can even take place indoors, without wind, with either miniature kites or a full size BioKite. A young man with epilepsy who is a great spokesperson for the benefits of kite flying flies one on America's Got Talent.

If you'd like to comment on kite flying, please do so here or contact Heidi at 413-577-3840 or heidi.marie-peterson.state.ma.us. We'd love to hear from you! You can also visit us on our facebook page!

Thanks to Wilderness Inquiry for the beach photo and Kites Over New England for 2nd two images.

Thursday, April 14, 2011

SideStix in Action

We finally got to test SideStix today in an urban park in Worcester. Dwayne Boyd has provided us with the first real run on these adaptive all-terrain crutches and the feedback I've needed to assess them for our hiking program. Dwayne is a few months shy of forty and has cerebral palsy. It was his second time testing SideStix. Both times he marveled at the reduced impact on his joints that the shock absorbing design offers.

Last month we took a short walk outside the Buffone Rink before a skating program and tried SideStix on a rapidly melting snowfield still over a foot deep. He was amazed by his ability to float on top of the snow using the snowshoe attachments. Afterwards he said, "With these crutches I could go out in the yard and play in the snow with my kids! I know this product is intended for specialized use, but I would buy them to use everyday!" Since then, he's been working every angle to acquire a pair. Dwayne has written his own account after his first use of SideStix which you can link to here.


Dwayne uses an allen wrench to swap out tips on SideStix.
In today's test adventure we tackled the beach and a gravelly acorn-laden uphill trail, scrambled over a stone wall, ambled through the paved parking lot, and took a short stroll on footpaths to get onto a wooded knoll. Dwayne's mother Linda joined us for part of the time, and treated me to a potent dose of  mother's pride. "I remember the doctor sitting down with us when Dwayne was a kid," she said. "He gave us a list of all the things Dwayne would never be able to do. I'll never forget the day when Dwayne crossed the last one off the list - that one was 'having children'." I was dying to hear what else Dwayne had crossed off the list, but I had to run to keep up with him!


On the beach, Dwayne once again discovered he had better grip on the ground with SideStix. "This would be impossible on my regular crutches," he noted. With the spike and trail basket at the crutch tip, they performed well in both wet dense and loose dry sand. SideStix gave Dwayne more efficient use of his energy - he could travel farther than on his own crutches. He also traveled faster on level ground. The rotating articulating tip gave him more secure contact with pavement and all its irregularities. He found the spike surprisingly easy to adjust to using on the trail.

Dwayne had to give the crutches up briefly to get over the stone wall, took a tumble when he stepped on the trail basket at the crutch tip by accident, and decided not to tackle a steep grade with loose gravel when he met the edge of his comfort zone. Otherwise, Dwayne would have kept going until dark I think. Playing with his daughters at our skating program was on his agenda for the afternoon. Between "sidesticking" and ice sledding, Dwayne should sleep well tonight!

Saturday, April 9, 2011

Summer Camps for People with Disabilities in Massachusetts and Beyond


Camp Arrowhead buddies in the waters of Lake Cochituate.
Photo by Ken McGagh, MetroWest Daily News Staff.
I've been hearing about summer camps for kids with disabilities in Massachusetts and decided to investigate further. Turns out many camps have been around for over 50 years and have well-established communities. It is truly inspirational to scan through their websites. I offer a few descriptions here as a sample of the possibilities.

Camp Arrowhead on the shores of Lake Cochituate (just outside Boston) is sponsored by the Town of Natick Recreation and Parks Department. The day camp serves both kids (age 5 and older) and adults with a wide range of disabilities from late June through mid August. A one week trip to Lion's Pride Camp in Durham, NH offers a residential experience later in August. Camp Arrowhead is open to Natick residents with some spaces available to non-residents. Each camper is paired with a teen companion in what appears to be a very successful community-based support system.
Camp Jabberwocky is a small residential vacation camp for kids and adults on Martha's Vineyard, that originally began as an opportunity for kids with cerebral palsy and has since expanded its audience, serving about 100 campers each year. Activities include dance, community plays, jet-skiing and para sailing, with occasional visitations by island celebrities. Campers and staff are profoundly dedicated.
The Bridge Center offers several summer day camp experiences in southeastern Massachusetts, specifically oriented towards campers with autism spectrum disorders, learning and cognitive disabilities, and behavioral issues. Campers are organized into small groups based on disability similarities and engage in both traditional and therapeutic recreation activities including swimming, archery, horseback riding, and a low ropes course.
Camp Howe in Goshen is over 80 years strong and offers a full range of traditional day, overnight and weekly camp activities on a waterfront with a farm experience adjacent to the D.A.R. State Forest. This is an inclusive camping experience. A program called ECHO works with campers with disabilities separately and mixed in with general campers. Camp Howe is dedicated to cultivating understanding and appreciation of individual differences.

Accessible tree house at the Fowler Center.
I could go on and on! There are many more camps and quite a few specialize in particular individual circumstances such as diabetes or limb differences. If you are seeking information about summer camps this year, link into a one-stop resource on the New England Index website. If you have a camp to recommend here, feel free to comment!

I confess I have unabashedly borrowed these photos in order to help promote the summer camp opportunity for people with disabilities. I also cannot complete this post without mentioning the Fowler Center in Michigan as further inspiration - a unique facility lovingly created by a visionary individual with cerebral palsy that offers an accessible tree house and a camp for kids on ventilators (with medical doctors from the University of Michigan as dedicated staff). Perhaps we have an equal here in New England - my research ends without revealing this possibility.