Play Sled Hockey with Spaulding!

Last week I visited a sled hockey program at one of our DCR skating rinks and spontaneously ended up in hockey pads and helmet, doing puck passing and checking drills, and playing in game! After fifteen years of offering adapting skating programs in DCR skating rinks, it was a treat to experience the competitive dimension of sled hockey.

Three program staff were fitting new players and their companions into ice sleds when I arrived at the O'Neil Rink in Charlestown. There is a bit more to fitting people to ice sleds when hockey is involved. Blades are adjusted closer together and positioned under the sled for best balance to lift the front end of the sled and minimize drag on the ice. A nice tight fit into the seat allows the whole sled to become part of your body. The hardest part for me was grabbing sticks with hockey gloves on!

Angie and Dan Boyle Have a Great Year

I met Angie and Dan Boyle last July as new participants at our adaptive kayaking program at the D.A.R. State Forest. They quickly became dedicated participants, coming to several different programs weekly around the state all summer and making the most of every opportunity available. Angie's story is a true inspiration for getting out there and enjoying all the great benefits of time well spent in the outdoors! Thank you Angie and Dan Boyle for sharing your story in the following Guest Post! We look forward to seeing you this winter!

As the 20th anniversary year of the Massachusetts Department of Conservation and Recreation (DCR) Universal Access Program ends, we had to report the very significant impact its activities have had and continue to add to our lives.

Here’s a little background:

Angie and Dan on Spectacle Island.

On August 25, 2013, while swimming at Biddeford Pool, Maine, I (Angela) was swept by a rogue wave into a rock.  The result was a soft tissue brain injury.  That made it impossible for me to continue in my profession as a family nurse practitioner, a career I pursued since I was an early teen.  That was followed by multi-organ failure in late February 2014 for which I was hospitalized at Baystate Medical Center for eight days.  About eight weeks later, when the Baystate VNA was discharging me so I could attend rehabilitation classes at the Weldon Rehabilitation Hospital, I fell and fractured my left leg in three places.  Honestly, I felt like I was living Murphy’s Law:  Whatever can go wrong, will go wrong. 

 

Besides the physical health problems, the mental anguish, anxiety and depression were taking their toll on my husband Danny and me.  Whenever Danny tried to get me out of bed and out of our apartment if only to take a drive in our car, I wasn’t interested.  The fact that I could no longer care for patients was causing major depression.

Hiking After Traumatic Brain Injury

"People with TBI are often physically inactive, leading to reduced fitness levels and secondary health conditions. Regular physical activity can enhance balance and coordination, decrease reliance on assistive devices, and improve ability to perform activities of daily life and, therefore, foster independence. Studies also suggest that exercisers with TBI were less depressed and reported a better quality of life than those who did not exercise. The key is to find which exercises the person with a TBI enjoys and develop an individualized exercise prescription that accommodates each person's needs and abilities."  
- National Center on Health, Physical Activity and Disability.

 

This fall, I happily designed and facilitated a pilot hiking program for people with traumatic brain injuries in western Massachusetts. Before we'd gotten our small group out on the trail, one of our participant's personal caregiver said to me, "I get more physical therapy with Kevin on the trail than in the clinic. It is so much more meaningful for him to be in nature. I'm limited to where we can hike though, because we can't go beyond a safe distance for emergency services in case anything happens. So mostly we hike on one trail in a local state park."

Go Grit Freedom Chair

This year I've test driven the Freedom Chair, a recently developed off-road manual wheelchair, twice. This stunningly solid, affordable and conveniently designed wheelchair was created by MIT students as a school project and produced in quantity for use in underdeveloped countries. This innovative entrepreneurial student group has since launched a company, called GRIT, to produce the Freedom Chair for sale in the U.S. In their first year they've sold seventy chairs so far.

I first tested the Freedom Chair in early spring, with snow still on the ground, as the Go Grit team was fundraising to produce their first round of chairs. A couple of us in the Universal Access Program were able to test ride it outside our office and discovered that it could travel over grassy terrain and snow patches with ease. We could even work it up over curbs and handle uneven terrain pretty well. Our landscape was limited though and we didn't have a true user, someone who actually uses a manual wheelchair, to give us what I would consider official feedback.

Joannah Whitney Rows Far

Story and photos by Laila Soleimani

Joannah Whitney is an avid rower. She’s a regular participant in our Universal Access Program as she has been rowing on the Connecticut River for the last three seasons with Holyoke Rows. Formerly an archaeologist before a diagnosis of MS, she’s someone who loves being out in the natural world, particularly on the open water. During the regular rowing season, from May-October, Joannah is on the water every week, without question.

I first met Joannah this past August.  Looking very comfortable and relaxed on the water, she smiled from ear to ear, when I asked her to pose for a photo. She has that same jovial smile when I ask her to tell me what she loves about the rowing program. “Over the course of the season I get to see the trees change, I get to see the water level rising and lowering. I love seeing eagles, herons, cormorants, or other animals on the banks, or in the water. I love the feeling of putting my oars in the water, pulling against it for part of the stroke, then feeling the scull glide as I reach forward to start the next stroke.”

Testing New Adaptive Paddling Equipment

This month, DCR's Universal Access Program staff have been testing out some new adaptive equipment for next year. It's been a treat to get out into the fall landscape!

We tested a canoe paddle modification we made based on a recommendation from AccesSport America. Bending the paddle in two spots keeps hands low for those who have trouble raising their arms. We found this modification worked in both bow and stern. Adding hand supports from Creating Ability made it possible to steer. Our only concern is the paddle could be lighter!

We also tested new kayaking equipment from Creating Ability including the kayak chariot, transfer bench and paddle pivot.

The kayak chariot makes pushing and pulling boats in and of the water with passengers much easier and takes a lot of strain off staff. We found a little bit of back bend is still required, but very little effort to move loaded kayaks. Empty kayaks can be placed on the big-wheeled chariot, then quickly hooked into place with straps. A small stepstool is required at the bow to level the kayak for loading.

Spectacle Island Adventure in Boston

Thanks to Laila Soleimani for this second Guest Post with photos!

This month, I had the opportunity to go to an adaptive hiking program on Spectacle Island. The program, organized by Stavros Outdoor Access as part of the DCR Universal Access Program, allowed participants and their family and friends to enjoy a fabulous outing in Boston with gentle hiking and breathtaking views of the city’s skyline.

Spectacle Island, 114 acres and just 4 miles from Boston in Boston Harbor, is an accessible getaway open annually from May to Columbus Day weekend in October.  It’s a twenty minute ferry ride from Long Wharf and a perfect day trip for anyone interested in exploring. The ferry ride allows for a closer look at the gorgeous boats on the harbor and planes landing at Logan International Airport. We had clear sunny skies and perfect weather to do just this.

When we first arrived at Spectacle Island, we convened at the technologically green visitor center, where an interpreter taught us about the history of the island. Outside of the visitor center were big Adirondack chairs where some of us sat and lunched while taking in the sights. Given that Spectacle is the highest point in the harbor, there is quite a bit to see. It’s a tranquil change of pace from the hustle and bustle of everyday life.

Acton and Arnold Arboretums Accessible to All

Thanks to Marjorie Turner Hollman for her second Guest Post and for keeping us informed about great accessible places to visit and enjoy nature!

My husband and I used to visit the Acton (MA) Arboretum often in our courting days. It had been a while since we last visited, but we stopped there recently and found some positive changes in this 64-acre town-owned arboretum. Much remains the same: shady paths, a ramp with railings through a wetlands area, and herb gardens. The boardwalk over a quaking bog offers interesting sights and exciting views of diverse plant life (if you love swamps). Throughout the arboretum are lots of both sunny and shady spots to simply rest and enjoy being there. And if you’re a fan of shade-loving hosta plants, you’ll have the opportunity to study 150 different varieties.

In the past, the trails were all crushed stone or woodland paths. But on our most recent visit, we found some paths that are still crushed stones, but many of the trails that lead from the main parking area off Taylor Road in Acton are now paved. We also found a handicapped-accessible port-a-potty next to the parking lot (available from May-November). The Acton Arboretum information kiosk (and website) notes that numerous other accessibility improvements are in the works. Great news all.

WIndrush Farm Offers Adaptive Horseback Riding in a Massachusetts State Park

This month I once again visited Bradley Palmer State Park in Topfield, MA to assist with an annual adaptive horseback riding program facilitated by Windrush Farm Therapeutic Equitation. Four horses and a dozen or so staff and volunteers from Windrush Farm provided 40 minute trail walks through the forested park. A ramp - trailered in an unfolded on site - allowed riders to walk up to a platform from which they could safely mount the calm horses, with assistance if needed.

Interested riders had pre-registered and filled out paperwork to meet the requirements of riding, including a doctor's signature. Individuals, families and groups came to fill the four riding spots per hour. My job was simply to greet and further register people arriving on site and serve as a liaison between Windrush Farm, park staff, and the public. It was a hot day and some riders had cancelled last minute. The horses and their attendant staff stayed cooler in the shade between excursions.

Celebrating the 25th Anniversary of the ADA and More

The following Guest Post is from Laila Soleimani, a new Outreach Assistant for DCR's Universal Access Program. Just coming into the world of disability rights and adaptive recreation at this historic moment, Laila shares her experience of the ADA Celebration on the Boston Common.

A few of DCR's adaptive bikes in the parade.

             As crowds of people eagerly began to make their way to the corner of Boylston and Tremont Streets for the kick-off march, the 25^th anniversary celebration of the Americans with Disabilities Act was underway.
 

 I walked amidst the crowd, passing friends excitedly gathering together and volunteers holding signs ready to assist. There were many different organizations showing their support at this event. The bright, vibrant colors of their t-shirts against gorgeous green grass made the event vivacious and colorful.