Juan Botero - Inspiring Mountaineer and Fundraiser for Kids



Juan on his Greenspeed recumbent bike.

This Saturday, September 24th, is the annual Rodman Ride for Kids in Boston - a unbrella charity event in which various local organizations will be raising money through sponsorships. About 1200 cyclists will ride 25, 50, or 100 mile non-competitive tours to raise money for youth-focused social service agencies that support and improve the lives of at-risk children in Massachusetts. Among the cyclists will be Juan Martin Botero, riding 25 miles to raise money for Partners for Youth with Disabilities.



Juan en route to Machu Picchu in Peru.

Juan is a native of Colombia who was born with Ataxia, a genetic and degenerative neurological disease that didn't start to effect his life until he was 26 years old, two years after he moved to the U.S. An experienced mountain climber and guide in Columbia, Juan continues to follow his passion at age 37 from a wheelchair. Through an Iowa-based organization called Alpenglow Adventures, Juan has fulfilled dreams to hike 10 miles to the bottom of the Grand Canyon, summit 19,340 foot Mt. Kilimanjaro, and hike 28 miles to Machu Picchu in Peru. In doing so, he became the first person who cannot walk to access these remote locations. Of these three sites, Juan's favorite trek was Kilimanjaro.



I asked Juan about the adaptive equipment provided by Alpenglow that he used to complete these adventures. The Trailrider got him to the bottom of the Grand Canyon, along with lots of assistance. The kilicart, more comfortable and maneuverable for longer trips, was used in Africa and Peru. Both are assistive devices that allow other hikers to push and pull the wheeled hiker. (Alpenglow welcomes experienced hikers to join trips as porters!) The challenge with this type of gear is building in more independent usage. Juan says, "The more I use the devices, I want to improve their design." I notice this too - there is plenty of room for improvement with adaptive hiking chairs we use in our programs.

Juan and Alpenglow hikers atop Mt. Kilamanjaro.

This will be his third year cycling in the Rodman Ride for Kids. Juan is a inspiring mentor for youth with disabilities. Click here to sponsor Juan on the ride - and help Partners for Youth with Disabilities continue to provide support, understanding and guidance via positive adult role models for youth with disabilities as they strive to reach their personal, educational and career goals. Go Juan!!!!

Other Boston area events this weekend: Get to one if you can!
Change People's Lives - Conference and Expo - Friday, September 23 - Hynes Center
Life is Good Festival - Prowse Farm, Canton - Saturday and Sunday, September 24 and 25

Kite Festivals - A Celebration of Color and Fun!

A slide of the sky viewed through arches made of kites.

My spirits are still soaring after attending yesterday's Capriccio Festival of Kites in Ogunquit, Maine. It was a perfect day for the beach with sunny skies, a touch of clouds, and a gentle cooling breeze. As Meb and I drove down the lane from the center of town to the beach, big "WOWs" escaped our throats as we gazed at enormous kites and quantities of richly colored designs riding the wind.

We had come with a big bag of kites to fly ourselves, but also to help with the event, in exchange for free parking ($20 otherwise!) and a free t-shirt  We donned our t-shirts and became instant judges for the kite decorating contest. Tables were set out in the parking lot (very accessible!) where kids were busy coloring sled style kites with markers. I was pleased to find one young participant in a power wheelchair at the task!



With a fistful of award certificates we strolled down the very crowded beach at high tide amidst a carnival-like atmosphere with hundreds of kites sailing in the air. It was a panoramic scene full of wild creations instilling awe at every step. From the tiniest dancing ladybug kite to the massive powerfoil holding a steady immobile presence above the crowd we delighted in the visual feast of buoyant colors. Our job was to seek out children, admire their kites, and hand out certificates that allowed them to get a free kite or festival t-shirt. What fun we had - even before we got to fly our kites!

Along the way we noticed a few other people with obvious disabilities in the mix and found Nolan, the young participant in the power wheelchair we'd met at the coloring table, now using one of the town's beach wheelchairs with kite in hand. (There is ramp to the beach!) This was Nolan's third year at the event and I know we'll be back too! Next year I hope to see more people with disabilities!



Festival scene at Ogunquit Beach barely hints at the variety
and quantity of kites on site from this angle. The biggest kite
in this picture is enormous.

Upcoming Kite Events in New England: Even a drive-by is worth it if you are uncertain about access! Many kite festivals seem to be free spirited public events, without full details in advance - just show up and enjoy! At kite fly is simply a group on kitefliers who have announced a date and place to show up and fly together. In either case, if you have any, bring your own kites to fly!

October 1, November 5, December 3: KONE Monthly Kite Fly on Nahant Beach, Lynn, MA. Contact Gary Quinton at 781-595-7687 or gquinton@verizon.net for more information. KONE is Kites Over New England, an organization devoted to kite flying of which anyone can be a member. I found out about the Capriccio Festival of Kites and these other events through their monthly calendar.

October 8 and 9: East Meets West Kite and Cultural Festival sponsored by the Chinese Multimedia Society, from 10am - 4pm each day at the Pope John Paul II Park in Dorchester, MA. Pope John Paul II Park has accessible parking and paved pathways with pavilions but no accessible restrooms.



Our favorite kid's kite design on right. We saw several 9-11
commemorative kites, but this one stole our hearts.

October 9: One Sky One World - a worldwide kiteflying event for peace and understanding, with events taking place all over the world. Click on link for more info about this amazing endeavor.

November 12: Holiday Kite Fly on Hampton Beach, NH. Contact Ralph Reed at 978-937-8290 or rreed3@comcast.net for more information. (I can't find a thing about accessibility at Hampton Beach on-line!)

November 13: Veterans Day Fly at Hammonasset State Park, CT. Contact Richard Bromley at 203-288-1582 or arembe@comcast.net for more information. Hammonasset State Park features accessible parking, bathrooms, boardwalk, camping, picnic tables, and beach wheelchairs!

Significant Health Disparities for People with Disabilities - Change That Now!



This family attended our cycling program last week in Hadley
- a perfect example of taking on the fun of improving health!
Photo by Nancy Bazanchuk.

In the past few days I received this update from the Institute on Disability at the University of New Hampshire:

Compared to racial and ethnic minority groups, people with disabilities are generally more likely to experience poorer health, according to a new report from the University of New Hampshire’s Institute on Disability (IOD). The report, “Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States,” examines the health status of working-age (18-64) people with disabilities, as reported to the Behavioral Risk Factor Surveillance System, the nation’s premier public health survey."

Among the key findings in the report:

• If people with disabilities were a formally recognized minority group, at 19% of the population, they would be the largest minority group in the United States.
• The highest proportion of people who say their health is fair or poor is found in people with disabilities (40%, compared to 23% of Hispanics, 22% of American Indian/Alaska Natives, 18% of blacks, and 8% of Asians). 
• People with disabilities have the least desirable prevalence rates for 10 of the 14 selected health indicators including cardiovascular disease and diabetes.

You can download the full report at IOD's website (link above). Just this much was enough for me to realize painfully (after 16 years of dedicated effort to improving adaptive recreation opportunities!) how important it still is for people with disabilities to find ways to improve their quality of life, get more exercise and enjoy the benefit of the outdoors. With this in mind, I recommend the following upcoming events:

CHANGE PEOPLE'S LIVES - September 23, Hynes Convention Center, Boston. At this day long conference and free expo you can experience the current state-of-the-art of inclusive products and technologies that transform the lives of people with disabilities and older people and enhance everyone's lives. Focus areas are Home, Work, Learning and Fitness/Recreation/Sport. Here is what I know about it: You can even find me there - with DCR's Universal Access Program in the exhibit area where we will have adaptive recreation equipment on display. This will be a great event for tapping into available resources and networking. I hear the Governor is coming! And it will be a GREAT TIME!

LIFE IS GOOD FESTIVAL - September 24 and 25, Prowse Farm, Canton, Massachusetts. This is a doubly beneficial event for kids of all ages! You go to have fun and at the same time your ticket raises money to help kids overcome trauma and life-threatening challenges by supporting Playmakers. There are musical performances by bands throughout the weekend and activities of all stripes including: Art for All Mural, dog show, BMX stunt show, instrument petting zoo, yoga, an endless variety of games, and more. Here's what I know about it: There is a team of doctors volunteering at the event to ensure that people with disabilities can participate in and enjoy the activities! On-line - check out the FAQ's about access for people with disabilities under "Event Info". Email festivals@lifeisgood.com if you have questions before you go. On site, ask for the "access program" at the Information Tent. And have a GREAT TIME!

A Glorious Day on the Schuylkill River in Philadelphia

Bo Tanner reports on the experience and results for the Holyoke Rows team participation in the 30th annual Bayada Regatta in Philadelphia on August 20. Luckily, the event was one week before
tropical storm Irene hit Philadelphia!


Holyoke Rows team from left to right: Jim Sliski, Ben Kidston, T,
Bo Tanner, Carlos Gonzalez, Stephanie Moore, and Jim Brooks.

Five members of the Holyoke Rows adaptive rowing team and coach Stephanie Moore traveled south on Friday August 19th for some fun in the sun and heavy duty competition at the nations only adaptive only regatta. That’s right, the able bodied athletes had to sit this one out and watch the fierce competition. We started with the Jolly Up cocktail party receiving information on the course, races, rule changes, and greeting old friends. The athletes were also informed that around half of the Paralympic rowing team were competing in this regatta as a warm-up for the world competition starting on the following Monday in Croatia. Yikes! I hoped all that training this summer would pay off! We got an unexpected surprise when our little buddy T showed up at the party with his mom, our coach, Stephanie Moore. This was a boost for the athletes as T is one of our biggest supporters at the Holyoke boathouse, and a great man in the pit crew. Just the week before 8-year-old T rowed a single by himself on the Connecticut River with a swift current.

The 'Horse' Power

Emily Piccirilli just finished her second summer with DCR's Universal Access Program serving as an office clerk and providing registration and support at programs. As an avid horseback rider, she recently visited our small by mighty riding program at Bradley Palmer State Park. Here is her Guest Post perspective on the program!

Someone once told me that there is a healing ability within horses. Whether you have a disability or you just need time away from the stresses of life, horses have a way with a person that is magical. A "man's best friend" may be even better applied to horses. They have a way of boosting the confidence within yourself, and sensing your emotions and abilities. When a relationship is formed between horse and rider the healing is endless.

Getting Ready for the Regatta



Bo Tanner (wearing last year's Bayada Regatta t-shirt!)
and Jim Sliski clean boats in preparation for the Regatta.

Today was a lovely August day for a perfect visit at the Jones Ferry Access Center in Holyoke! When I arrived, a few older women were getting kayak lessons on the Connecticut River, which was smooth under a sunny sky with clouds. When I left a few hours later, a busy boat washing was taking place in front of the boathouse, where three adaptive rowers were getting ready for the Bayada Regatta coming up this weekend in Philadelphia.

Jim Sliski, Jim Brooks and Bo Tanner have been rowing - and competing - for several years now, using the Jones Ferry Access Center run by Holyoke Rows. Jim Sliski started rowing with DCR's Universal Access Program in 1996 upriver in Northampton, and has been a steady presence on the water ever since. He is competing this weekend though admits his "stamina is not great "as various health challenges have slowed down his training in the last year. Jim Brooks has had a "great summer" and is looking forward to Philadelphia. Bo is racing in three races, in doubles with partners and a singles race. Best wishes to all three this weekend!!!

Bo takes a light training run on the river today
after weeks of steady training.

Holyoke Rows is a non-profit organization I sometimes think of as a pseudonym for Stephanie Moore, the soft-spoken mother of four who tapped into local resources to convert a rundown river front into a thriving recreational community center just east of the Holyoke Mall. A firm believer in "access for all", Stephanie has made a traditionally elite sport available to an often disadvantaged local demographic that includes city kids, seniors, and people with disabilities.

The Bayada Regatta is an internationally famous adaptive rowing competition, now in its 30th year. It is the oldest and largest adaptive rowing competition in the U.S. This year's Regatta takes place Saturday, August 20, from 8am-4pm.  Holyoke Rows will run its annual Paper City Regatta this year on September 25 at the Jones Ferry Access Center. I'm sure we'll see both Jims and Bo at this race too!

Great Gear You Can Use! - in State Parks!



Sun worship at Salisbury Beach State Reservation.

BEACH WHEELCHAIRS

There is still plenty of time to enjoy the beach this season! Most coastal New England states offer beach wheelchairs at state parks. Styles may vary but usually require someone to push. Chairs are designed to get you TO the water, assistance may be necessary to get INTO the water.

Massachusetts State Parks: Over 40 parks offer beach wheelchairs on the ocean and inland! Beach wheelchairs are made of PVC pipe and feature a movable arm for transfers and large balloon tires for travel across sand to the water. No fee to use – bring someone to push the chair. Reservations are sometimes required and always recommended. Contact the park directly. Click here for a list of parks with beach wheelchairs.

Connecticut State Parks: Five parks - Hammonasset Beach, Rocky Neck, Sherwood Island, Silver Sands and Squantz Pond - have beach wheelchairs available for visitors. The chairs are free of charge and are on a first come, first serve basis.

Rhode Island State Parks:  Beach wheelchairs are available free of charge, also on a first come, first serve basis, at the following R.I. state beach locations; Scarborough North, Scarborough South, and Roger Wheeler.

Maine State Parks: At least 2 state parks in the southern region advertise beach wheelchairs. Call the regional headquarters in Augusta at 207-624-6080 for more information about beach wheelchairs at Crescent Beach State Park (near Portland) and Popham Beach State Park (near Bath).



Perforrmance style handcycle available to ride in R.I.

HANDCYCLES

There are two New England locations worth knowing where you can use a state-provided handcycle to ride beautiful coastal areas!

Cape Cod Rail Trail - Rent a handcycle and ride through several Cape Cod towns on forested paths! You can also explore adjacent Nickerson State Park bike paths. Two adult touring models (Quickie Mach 3) available at Cape Cod Rail Trail Bike Shop.

East Bay Bike Path -  On a first come, first serve basis, two hand cycles are available at Colt State Park for use through out the park or for the East Bay Bike path in Bristol, Rhode Island.



Ice Sled in use at Buffone Arena in Worcester.

ICE SLEDS
Surprised? Some ice rinks are open year round and offer wonderful respite from the heat or an alternative rainy day activity. Many state rinks in Massachusetts offer ice sleds for seated skating, with short hockey sticks with picks for self -propulsion and an attachable stroller bar for those who need to be pushed. Check out public skating times on-line for each rink. No fee to use sleds, rink admission fee may apply. Recommended  year round rinks:

Jim Roche Community Ice Arena in West Roxbury - currently 7 sleds with 7 handles through October 6th.

Smead Skating Arena in Springfield - currently 4 sleds with 2 handles year round.

Buffone Arena in Worcester - currently 4 sleds with 2 handles year round.

Armstrong Skating Arena in Plymouth - currently 2 sleds with 1 handle year round.

Creating Ability Offers High Quality Kayak Adaptations



Creating Ability kayak set up with pontoons and low back
seat in use at D.A.R. State Forest in Goshen.

It is challenging to post with peak time in summer recreation activities taking place now, but here is a quick look at kayaking. In particular, we are putting some new kayaks from Creating Ability into good use at our kayak programs in Concord, Worcester and the Berkshires.

I was thrilled to discover Creating Ability last summer and purchase some kayaks with pontoons and adaptive seating this year. The design is the best I've seen for pontoons on kayaks, which provide greater stability for more vulnerable paddlers. I especially like the independence these boats offer to paddlers who might otherwise have to be in a tandem for the stability reasons or struggle to paddle independently with compromised stability and comfort. The boats come with color coordinated pontoons in a complete package - very nice!


Paddler struggling with balance and proper seating could
benefit from pontoons and more formal adaptive seating.

The adaptive seat offers good trunk support for those who need it. The high back can be easily removed. Both low back and high back sides adjust in and out to accommodate narrower and wider bodies. The seats can be angled or straight depending on preference and comfort. The addition of a Jackson "sweet cheeks" cushion, which easily fits to your specific anatomy, adds a final level of comfort. I'm surprised people are willing to get out of these kayaks when their sessions are over!



Other recreation organizations in Massachusetts that have been acquiring kayaks from Creating Ability this year include All Out Adventures, Holyoke Rows, and Waypoint Adventure. These boats are making their way into a variety of kayak fleets! Thanks again to Ralphe Marche of New England Handicapped Sports Association for showing me this great equipment last summer!

If you are looking for better grip adaptation for kayak paddles, you may not need to look further than Creating Ability. For years we've been making do with home-made adaptations that help hold hands to paddles while still allowing them to slip out easily. Charlie Croteau makes a great hand adaptation for people who are quadriplegic but doesn't mass market it. Creating Ability provides three good solutions for common hand adaptions needed in paddling - a simple grip support to keep fingers on paddle, a more involved wrist and grip support for people who are quadriplegic, and a way for one armed or hemiplegic paddlers to succeed. This last adaptation is currently going through a design change so we are still waiting to try it out. Check it all out on their website: http://www.creatingability.com/

Explore the Parks with Outdoor Access



DCR park interpreter describes fort history on Georges Island.

Summer is rolling along and so is our adaptive hiking program! Here's an update:

Outdoor Access, affiliated with Stavros Independent Living Center in Amherst, MA, facilitates these gentle outings as part of our DCR Universal Access Program each year from May through Octoberr. Recent outings to Rutland State Park outside of Worcester, Georges Island in Boston Harbor, Walden Pond, and Blue Hills Reservation south of Boston have all been described as "Fun!" by everyone I've talked to. Adaptive recreation equipment and friendly staff allow for better access to park trails. Interpretation and letterboxing give the hikes an educational and playful component.

Georges Island is a unique place to visit - it features a historical military fort and a brand new visitor center. Recent additions of 6 ramps make the fort more accessible than ever before. A pleasant ferry ride from Long Wharf in Boston will get you there, with Boston Best Cruises. Consider visiting Spectacle Island too - its a real beauty with gentle hills that offer easy travel to the summit along a paved path - with a great view of Boston. You can go on your own any day of the week. If you use a wheelchair you'll want to be aware of the tides and contact the park to ensure best docking times. Each year we offer a group accessible tour with Outdoor Access and for some people, "it is the only way to go!"



The use of a mountain wheelchair for more rugged terrain
allows staff to better assist wheelchair users.

Yesterday's hike at Blue Hills Reservation in Milton took place on a perfect summer day. Two groups came from The Educational Cooperative and a low vision group joined us later. Some families also participated with several young children. Everyone enjoyed finding stamp, stickers and simple game activities in letterboxes while hiking a mile around Houghton's Pond. 

Join us for more state park outings!!! Don't miss out! Individuals, families and groups welcome! To register for any of the following programs, call Outdoor Access at 413-259-0009.

August 15         Breakheart Reservation, Saugus

August 31         Robinson State Park, Agawam

September 15   Chicopee State Park, Chicopee
October 6         Borderland State Park, Sharon
October 12       D.A.R. State Forest, Goshen
October 22       Maudslay State Park, Newburyport

New Adaptive Recreation Discoveries Near and Far - Via Word of Mouth

The Boston Renegade Beep Baseball team. Rob Thayer
on the far right side standing tall.

At last week's ADA celebration in Gardner, I met Robert Thayer, a blind man who mentioned to me he plays Beep Baseball with the Boston Renegades.

"Beep Baseball!" I said, "What's that??"

"It's baseball for blind people," he smiled as he explained. "We play with an electronic ball that makes a tone we can hear. There are two bases instead of three, and the pitcher and catcher are sighted, but everyone else is blind."

I finally got to look it up today. Check out this YouTube video that shows the game in play. So cool!

Wheelchair swing in use at Morgan's Wonderland.

This week, while flying kites on the beach in Falmouth, I met a woman who told me all about an inclusive amusement park in Texas where everyone can enjoy a family fun park experience in grand style. She couldn't remember the name of it though. Thanks to the internet that is no longer a barrier! Just search for "accessible amusement park, Texas" and you'll find the website for Morgan's Wonderland, no problem! Very inspiring place!

I'm particularly intrigued by the Sensory Village and the Music Garden - there is also an accessible carousel (we have one here in at Holyoke Heritage State Park also). You'll find an amazing array of opportunities at Morgan's Wonderland, including a dedicated fitness center for people with disabilities. According to the website, only 10% of the population of people with disabilities engages in sports and recreation play. (Ouch!) Maybe that's true in Texas, but not here in New England, RIGHT? Actually, Ross Lilley of AccessSport America in Acton, MA, was just interviewed in the Boston Globe and he talked about the same phenonmenon. If you have any more perspective on this, please share!

In the meantime, the woman on the beach told me she'd heard of someone who moved to Texas just to live near Morgan's Wonderland! Check it out!