Supporting Adaptive Kayaking in the Berkshires

Guest Post from Emily Piccirilli, our Universal Access Program summer clerk, who offers a her unique perspective on helping with our adaptive kayak program from shore. Emily paddled with the program for the first time this week. Thanks Emily for all you do, which is much more than "simply registering participants")!

I can’t think of a better way to spend a Monday afternoon than kayaking out in the summer air. The Adaptive Kayaking program at the D.A.R. State Forest in Goshen MA, at the eastern edge of the Berkshires, is lead by Brenda Kennedy-Davies of Stavros Outdoor Access. It is a fun way to get out on the water with support if you need it. Brenda, an occupational therapist, and her staff are all avid kayakers and have a wealth of knowledge about outdoor recreation and safety on the water. A trained lifeguard is also present. At 5 dollars per person the program is affordable!

The park is beautiful and filled with many recreational options. With easy access to accessible trails and a swimming beach close by, many participants sit at picnic tables and have lunch before or after their kayak session. Whether you are arriving early or staying later, swimming at the beach is a fun way of cooling off after kayaking on a hot day.

In my three years of helping with registration at this program I have met a variety of different and wonderful people. I have made many new friends and learned a lot about outdoor recreation. The program is open to all - from beginners getting into a kayak for the first time to those who have been kayaking for years. The excitement of the participants fills the air as they launched onto the water. Across the lake I hear fun-filled laughter as they play water games like basketball or tag by tossing a rubber chicken into boats. Blueberries growing along the water’s edge can be picked by hungry kayakers who drift by.

I love this time of the year, when I can get out of the office and join in the group effort to help those with disabilities do what some think they will never be able to do. The joy on their faces as they discover that they can do it is the greatest reward. I take it all in and watch from the water’s edge as Brenda and her staff kayak out across Highland Lake with participants, some of whom may struggle to get around on land, yet glide effortlessly on water. I could not have said it better than when Allan Butson came up to me after he and his son Brandon went out kayaking for the first time and said “this organization and everyone here is wonderful.” He couldn’t be more right about the devoted group of people who work so hard to make these programs happen. Although my job is simply to register participants, I am proud to say that I, in my small way, was able to help make someone’s dreams come true.

JOIN THE FUN!

Adaptive Kayaking programs at D.A.R. State Forest are held on Mondays: July 30 and August 6 with Outdoor Access. Call Brenda at 413-259-0009 to pre register! Also, if Monday’s don’t fit into your schedule kayaking at D.A.R. State Forest is offered by All Out Adventures on Wednesdays: July 18 and 25 and August 1, 8 and 15. Call 413-527-8980 to pre register!

Paddling Adaptations

We are gearing up for our summer paddling programs to start next week! A new purchase for canoeing this year is the Universal Paddling Seat from Creating Ability. We started using this seat for kayaking last year. Adjustable side bars are fantastic options for those who need torso support and can be removed individually for those who don't. The overall comfort and stability of this well designed seat inspired me to get some for canoeing as well.

The canoe version mounts on a conventional wooden canoe seat - there is no design yet for plastic molded canoe seats, though that may be in the works. The terrific advantage of the Universal Paddling Seat is that it enables someone who might otherwise be relegated to the "duff" position in the middle of the boat to sit on a seat and paddle in the proper position. It also offers reclined positions and shoulder support if the person in the bow is not paddling. The beauty of the seat design is that it can be adjusted easily to offer as much or as little support as needed by each individual paddler. We are looking forward to trying this out with program participants in July!

Often the most needed modification is assistance holding and using the paddle. We've been using Creating Ability's hand adaptations since last year as well. No more home-made hand supports using inner tubes and zip ties! The basic across-the-back-of-the-hand-grip works well for those who have some  hand function but need support to keep the hands on the paddle.  Hands slide in and are held in place comfortably and can be slid out with ease.

For those unable to grasp the paddle but have good arm function, Kevin Carr of Creating Ability offers a unique hand cuff that slides into an attachment on the paddle. Hands are held in place on the paddle even if fingers can't grip the bar and the arms can be used to propel. In the event of a capsize, it is simple to slide the cuff and therefore hands out of the paddle attachment. New this year, we are exploring Kevin's latest adaptation for one-armed paddling, called ProPel, using a similar cuff system mounted in the middle of the paddle. Kevin also suggests the ProPel can be used with canoe paddles. We'll try it out.

Recently, I happened upon an innovative one-armed paddle design for canoeing designed a few years back in Wisconsin by a professor of outdoor education at Northland College. View it on YouTube here. If you are interested in this item, contact cdillenschneider@northland.edu.

Summer 2012 Adaptive Biking Opportunities!

Adaptive cycling opportunities in Massachusetts and beyond continue to increase! Here are the active cycling opportunities in New England I know of - all great resources if you are looking for bikes to use and others to ride with!

Spaulding Riders Club - A community cycling club in Boston inclusive of athletes with physical disabilities will hep members find the right assistive devices to enjoy cycling on a regular basis. The Club hosts rides that are open to everyone regardless of disability status, every other Thursday from Memorial Day to Labor Day. The dates are June 14 and 28, July 12 and 26, August 9 and 23. Cyclists meet at the Spaulding Rehabilitation Hospital Boston Pier, 125 Nashua Street in Boston (near the MBTA North Station) at 5:30pm. Ride begin at 6pm. If you own our own cycle, no reservations are necessary. For more information or if you are an athlete with a physical disability who are already been fitted to an adaptive cycle and would like to rent a cycle for the nominal $5 per session fee, please call 617-573-7104. Cycles are available by reservation only on a first come first served basis.

Spaulding's Adaptive Sports Center also hosts an every other Wednesday adaptive cycling ride along the Cape Cod Canal in Sandwich from Memorial Day to Labor Day in conjunction with CapeABLE Adventures.

Gaylord Sports Association Cycling Club - Monthly rides in Connecticut - Bring your own bike or reserve one. Call to reserve and directions will be sent to you a week before the ride. Rides are from 5-7pm, Tuesdays July 31 in New Haven, August 21 and September 18 in Cheshire. 203-284-2272.

DCR Universal Access Program - Weekly adaptive cycling program on Fridays from 11am-4pm in Hadley, MA from July 13 to August 24. A wide range of bikes available to ride in hour time slots on the 8 mile Norwottuck Rail Trail, including handcycles, recumbents, tandems and kid's bikes. Call All Out Adventures to register: 413-527-8980.

DCR also offers 2 adult handcycles for rental on the Cape Cod Rail Trail in Brewster at Rail Trail Bike Shop. Call 508-896-3491 for more information.

All Out Adventures - Cycling for Seniors (60+) - Weekly cycling program on Wednesdays from 10am - 2pm through October 17 in Hadley, MA. (No program June 27 and July 4). View their bike selection on line here. Call 413-527-8980 to register.

Northeast Passage - Click here for NEP's Summer Cycling Schedule! They'll be in NH, MA, and ME this summer with a variety of rides including the annual Notch Century Ride in the White Mountains where you can challenge yourself to ride 100 miles in 1, 2 or 3 days!!

Fun Day in the Park!

Fantastic weather and a perfect Adaptive Recreation Fair took place in Boston last weekend! Alongside the Charles River, people with all kinds of disabilities came to enjoy the beautiful day and try out cycling, kite flying and other activities at DCR's annual event.

Many wonderful volunteers and organizations helped make the day a huge success. As I visited each booth, I was amazed by the presence of many dedicated souls and marvelous endeavors than are improving the quality of life for everyone.

The Oak Square YMCA, located in Brighton, has an new adaptive fitness room. Maura Krueger, their health and wellness coordinator, showed me terrific photos of adaptive fitness equipment in use. I love that more gyms are coming on line with inclusive workout systems. Working out is a great way to build strength and endurance for outdoor pursuits! Find out more from Maura at mkrueger@ymcaboston.org

SMILE Mass is an organization new to us this year, the passionate mission of two women to improve vacation opportunities for families with disabilities. Their first project is to bring 100 beach wheelchairs to Cape Cod beaches by the end of 2012 . These aren't just any beach wheelchairs, but Mobi-Chairs, which are essentially rolling lounge chairs that float on the water. I had my first chance to actually sit in one and was impressed by their sturdiness and comfortable design! SMILE Mass has many more ambitious community-based projects planned. You can support their efforts through the purchase of ongoing raffle tickets. They offer great prizes! I'm right on board with this week's hot air balloon ride for two!

The Northeast Chapter of AMBUCS also set up a booth, with several AmTrykes for children on display. We recently purchased two Amtrykes, the 1516 ProSeries trike, which offers independent and/or supported steering and a range of seating adjustments that allow not just a wide range of users, but the potential for a child to grow up and still use the same bike. How cool is that? The first rider on our new AmTryke at this event demonstrated another vital aspect of this versatile and durable bike design - bring along your oxygen tank and ride! These bikes are a great personal investment - the Northeast Chapter offers 10% off AmTrykes and their therapists will help fit you to the right bike. You can reach them at NortheastAMBUCS@gmail.com.



New England Disabled Sports brought a wide selection of adaptive recreation gear, including the Action TrackChair, a motorized wheelchair with snowmobile treads that looks like the pinnacle of all-terrain mobility devices. Geoff Krill answered for me what I'm sure is everyone's number one question - it costs $9300 - seems like a lot of money, but for those in the market, it is much more affordable than other models which run upwards of $25,000. New England Disabled Sports is based in New Hampshire and affiliated with Disabled Sports USA, the U.S. Paralympics team, Loon Mountain Ski Resort, and the Wounded Warriors Project.

A light intermittent breeze off the water allowed kids of all ages to test small kites after decorating them under a tent. We love seeing the smiles this new activity brings as people enjoy both parts of the kite experience. Along with taking home these free kites, we hope those who attended the adaptive recreation fair will also carry with them a sense of fun and motivation to pursue more summer recreation opportunities this year!

A long list of credits must follow for such an event. Thanks to All Out Adventures for facilitating adaptive cycling and doing a fantastic job as usual! Thanks to Waypoint Adventure, Community Boating, Northeast Passage and Spaulding Adaptive Sports Center for providing recreation opportunities for all! Thanks to Stavros Outdoor Access for taking people on short hikes and letterboxing. We are grateful to the many staff of Massachusetts Department of Conservation and Recreation who helped with various tasks to make the day go so smoothly! Also to the Empowerment Christian Church for providing a crew of people to monitor event safety! Thanks to Work, Inc. for dedicating two nurses to cover first aid. I am most appreciative of my colleagues and co-workers in the Universal Access Program for all your hard work! Thanks to the Massachusetts Down Syndrome Congress, EMARC, Franciscan Hospital for Children, Partners for Youth with Disabilities, and Boys and Girls Club of Boston for all you do and providing a booth at our event! Heartfelt thanks to all who gave your time and energy in support of a great day!

Sample Recumbent Bikes this Saturday!!

Weather is looking fantastic for our upcoming event at Artesani Park in Brighton this Saturday! Partly sunny and upper 70s with a light breeze!  Should be great for our new kite decorating and flying activity. Come join us from 10am-3pm and check out a wide array of adaptive bikes. Cycling has been the big draw at this annual event. All Out Adventures will be running the adaptive cycling area where you can try out handcycles, tandems, kids bikes and recumbents.

Recumbent bikes are gaining in popularity these days and come in both 2 wheel and 3 wheel versions as single and tandem bikes. They offer better ergonomics for those with joint issues. The first time I rode a recumbent, I rented one so I could keep a cycling date with friends that a wrist injury otherwise would have prevented me from enjoying. I was amazed at how much easier it was on my body to ride! Most recumbent designs offer quite a bit of relief for ankles, knees, hips and wrists compared to conventional two wheeled bikes.

All Out Adventures not only provides excellent adaptive recreation programs in kayaking, cycling and other activities, they are a distributor for Terra Trike, a recumbent bicycle company located in Michigan. Terra Trike provides recumbent bikes at a an affordable price. We have recently purchased two of their Rover bikes with tandem attachments. I have been impressed so far with the quality and durability of their bikes. It is a great ride - read a test ride review here! Come check it out Saturday! We'll have the Rover tandem on site along with a nice variety of recumbent brands and styles. Northeast Passage, Bike-on and AMBUCS will also have bikes available to test ride!

DCR's Adaptive Recreation Fair is a great opportunity to try out adaptive bikes for fun and if you are in the market to buy one. It's also a perfect place to connect with all the wonderful adaptive recreation opportunities available this summer in the Boston area and beyond! Don't miss it!

Summer Opportunities with Northeast Passage!

RECREATION OPPORTUNITIES abound with this exceptional adaptive recreation organization!!!! Water Ski on Tuesday evenings! Fee: $20/Session Two locations: Attitash Lake in Merrimac, MA on June 12, 19, July 10, 24, Aug 7, 14 Swains Lake in Barrington, NH on June 26, July 17, 31, Aug 21, 28

Waterski Weekend: Fee: $20/day -- Sign up for one or both days! August 11 & 12 in Mashpee, MA Essential Eligibility Requirement: Participants must be able to turn themselves from face down to face up in the water, while wearing a PFD (life jacket). Instruction on how to do this can be provided. Please contact NEP in advance if you are concerned or have questions.

Disabled Sports USA 'I Can Do Anything' Youth Scholarships Available! The Disabled Sports USA ‘I Can Do Anything!’ Youth Adaptive Sports Scholarship! This initiative provides funding for youth with disabilities (under 18), with limited financial means, to participate in adaptive sports programs. By filling out the application, your child can receive a scholarship for the event registration fees, transportation and lodging costs! This scholarship is good for ANY NEP program between now and September! Contact NEP at 603-862-0070 or northeast.passage@unh.edu to receive an application.

Cycling at Acadia National Park, Maine! Date: June 16, 2012 Time: All Day Ride Acadia National Park in Bar Harbor, ME. Meet NEP there to rent your adaptive cycle and spend the weekend riding the 45 miles of historic carriage roads! NEP Cycle Rental Fee: $25/day. Summer Equipment Rentals! What do you do when you want to play but don’t have the toys? YOU RENT! NEP's equipment rental program makes it affordable to try before you buy, be a weekend warrior, gain skills, and be involved in more than one sport. Best of all, you get the choice and freedom you deserve. What are you waiting for?

Contact NEP to reigster for programs and reserve rental equipment. You can even rent waterskis! Call 603-862-0070 or email northeast.passage@unh.edu. Pre-registration is required for all programs and payment is required at the time of booking to hold your spot. Space is limited, so register soon!

The Eureka! Freedom Tent

Summer is rapidly upon us and those planning camping trips should know of the Eureka! Freedom tent! Several years ago at a National Recreaion and Parks Association conference in St. Louis, I met Diane Goodwin, the designer of the first camping tent designed with wheelchair users in mind. She was tweaking her final design of the new tent, which years later is still the main option on the market for people with mobility impairments.

Diane put some remarkable thought and innovative design into this product, which received the da Vinci award in 2006 for exceptional design that transcends mandated access requirements. The frame of the two-room rectangular dome tent is self-standing and can be set up by someone in a wheelchair from one side of the tent. The front door has an easy open flap system requiring little effort. The main entrance opens into a front vestibule that allows someone in a wheelchair to fully enter the tent before transferring into an adjacent sleeping area. This extra front room can also serve as a dressing room, dog sleeping area, or additional storage. The sleeping space has rear entry window-doors. Large door and window pulls on the interior make life much easier for campers with arthritis or limited hand mobility.

Blue Sky Designs, Diane's Minneapolis-based design business, teamed up with Eureka!, a well-known tent company, to make this excellent tent available to the public. Technically a two person tent, you can likely sleep at least one child in the front vestibule with a parked wheelchair. The Eureka! Freedom tent retails for $454, but can be found at lower prices online. It's well worth the investment if you are a serious camping couple or small family. The tent is such a great example of universal design that it comes highly recommended for anyone. New Englanders can check it out in person next month at the Adaptive Recreation Fair in Boston on June 9 at the Spaulding Adaptive Sports Center and CapeAble Adventures booth!

Adaptive Recreation Fair in Boston June 9

Now is the time and THIS IS THE EVENT to discover adaptive recreation opportunities in the Boston area and beyond! Come to Artesani Park along the Charles River on Saturday, June 9 from 10am - 3pm and enjoy a day in the park! Test ride all kinds of adaptive bicycles for adults and kids. Stroll the green, meet adaptive recreation providers and see their equipment on display! Take a short hike in a mountain wheelchair or with a sighted guide! There are myriad possibilities for summer fun to be found here, so don't miss out! This is your chance to do one-stop shopping, meet friendly people and make new connections!

Participating organizations include: Ability Plus All Out Adventures AmTrykeBike-on CAPEAble Adventures Community Boating DCR Universal Access Program New England Disabled Sports Northeast Passage Partners for Youth with Disabilities South Boston Boys and Girls Club Spaulding Adaptive Sports Center Stavros Outdoor Access Waypoint Adventures

Equipment on display will include the Hippocampe, Trail Rider, a wheelchair accessible camping tent, a beach wheelchair, and a sailboat. Facepainting, bubbles, kite decorating and flying (if there is wind!), gentle hikes, letterboxing, and a park quest offer additional enjoyment for all ages. Light refreshments and water will be available. Bring your own lunch and picnic on site! Bring your bathing suit if you want to cool off in the spray pool! Artesani Park is located at 1234 Soldiers Field Road in Brighton. Please call 617-626-1294 to pre-register! ASL interpreters will be on site. This is "not just any day in the park"!

Summer Camps: When Severe Disability Is NOT An Issue

Guest Post by Sarah Hart via Phil Dzialo, who writes a bodacious blog called Healing, Empowering and Thriving as a parent of a young man who is disabled. Thanks Phil, for allowing this guest post to be reprinted on Everyone Outdoors! And thanks to Sarah for her terrific work on behalf of kids with severe disabilities at a summer camp in Wisconsin. She reveals what is truly possible! This is a long blog post (and I'm having technical difficulties with Blogger - note there are no paragraph splits!) so start here and continue on at Healing, Empowering and Thriving for the entire amazing story with all the essential tips on how to best find a summer camp that will meet your needs.

Going to camp is a treasured childhood memory for many of us. Nights spent around campfires roasting marshmallows and days filled with activities, anything from weaving lanyards to horseback riding to swimming, glow like fireflies in the back of our minds. Far from behind a relic of the past, summer camps today offer a wide variety of programs, ranging from the traditional (archery, tent-pitching, canoeing, fishing, hiking) to more specialized (computers, photography, ballet). Camp is such a specialized series of events, and such an event in itself, that it may seem that it is specifically designed for campers without special needs. As such, parents of children with disabilities, whether mild or severe, often feel like there is no place for their child in a camp setting.

As a seven-year veteran of camps for kids with special needs, everything ranging from autism and Asperger’s syndrome to Down syndrome to brain injuries to cerebral palsy to rare genetic disorders, spinal cord injuries, involved medical conditions, and muscular dystrophy to hearing impairment and visual impairment, I am here to tell you that not only is it possible for your loved one to attend camp, it is possible for them to thrive in a camp setting. Nike used to use a slogan that I particularly liked: “Impossible is nothing.” While they no longer use it to sell shoes and athletic gear, I still use it when I talk about camps for kids with disabilities. And it’s completely true. Phil wrote a post on his blog earlier talking about how kids like his son Adam, who were basically “nursing home material… save the commitment of (the) parents” and how they’re not the kind of kids who go to camp. Except that every kind of kid is the kind who can go to camp.

At the moment I work at a camp for kids and adults with disabilities in Wisconsin. The particular program I work with is the respite camp, where we accept children, teens, and adults with medical conditions, disabilities, or behavioral problems that make them ineligible to attend most other camps or respite programs. Our program is one-to-one, one camper to one counselor, and our campers range in age from 3 up, with no real upper limit – I’ve worked with campers in their eighties! Our campers have a wide variety of conditions, including autism, cerebral palsy, spina bifida, muscular dystrophy, brain injury, PTSD, Down syndrome, among others. We see campers with severe physical and mental involvement as well as campers with severe behavioral involvement. Our campers vary in the degree of assistance they need - some need little to no assistance with personal care and participation in activities, and others need total assistance for all camp participation and personal care. We have campers with feeding tubes, catheters, Port-a-Caths, tracheostomies and other various "ostomies", brittle diabetes, intractable epilepsy, self-injurious behaviors, DNR orders, and more. We have two nurses on staff during the summer and usually one CNA to accompany them in the summer; during the "off" season when we are only running weekend programs, we have one full-time nurse and usually a second nurse for check-ins on Friday night.

Our camp offers a wide variety of “traditional” camp activities; swimming, cooking over the fire, painting, soccer, volleyball, paper crafts, and community trips, just to name a few. All of our activities can be adapted to any range of function. We have a dance every week, and everyone goes on an overnight camping trip, sleeping under the stars at one of our lovely campsites, set back into our 400-acre forest; natural beauty is everywhere. In addition to the traditional camp activities, we offer a high-ropes course, a travine swing, and a climbing wall with a zipline. The ropes course is set up so that everything except for the high-ropes elements is accessible to campers with physical disabilities. Our goal is to provide a special, fulfilling experience for our campers. If a camper is happiest when observing activities, or walking around camp, we make it happen. If a camper loves all the activities, we encourage them to participate to the highest degree. If a camper is unable to sit in a wheelchair for an extended period of time, we improvise. Some campers hang out on blankets or beanbags; others may bring their own positioning chairs. No matter how they are positioned, our campers are always in the middle of the action. Our one-on-one setup guarantees it. It is my belief that camps for kids with disabilities are an extremely valuable resource. Camps provide breaks for parents and caregivers, while at the same time providing new experiences for campers. Campers have the opportunity to make friends, try new things, and have adventures. Camps provide the kind of experiences you want to remember.

Here is just a short list of the potential experiences available at camps for kids or adults with disabilities: cook outdoors; write songs or poetry; identify birds by their calls; canoeing; tour a local monument or museum; archery; put on plays; camp out in tents; swimming; sculpting clay or stone; play Earth Ball, soccer, hockey, tennis, baseball, or volleyball; build models; tie-dye, tandem bike trips; games like tag or relay races; attend concerts or other live performances; play instruments; pontoon-boating or paddle-boating; group sing-a-longs; murder mystery evenings; purchasing items from the camp store; campfires; and spending time on high or low ropes courses. And that may just be the beginning. Remember when I said that I loved the slogan “impossible is nothing”? Well, it’s true. Throughout the seven years I’ve been working at camps for kids with disabilities, I have been witness to many things that I’m sure most people would find impossible. Here are two examples.

CONTINUE THIS ARTICLE AT HEALING, EMPOWERING and THRIVING! (If it is no longer on the front page, search the title of this post in the search box there.) Lots of great advice on how to shop for the right summer camp experience - DON'T MISS OUT!

Games and Kites!

Outdoor games and kite flying go well together for an adaptive activities program in an urban park setting. Kites have universal appeal, adding a colorful festive element that motivates people to look up and enjoy the sky. A variety of games can offer people options based on interest and ability. Today for our REC Connect program in Worcester all that was needed was a parachute and a selection of soft balls and rubber chickens to offer a fun experience for a small group of people that came out to play. Shouts and laughter from our small group playing parachute games caught the attention of several people walking laps around the track in Lake Park.

With the lightest intermittent wind we were able to get a few kites to lift up off of a big playing field. A little bit of running gave a couple of kiteflyers some exercise and a more sustained flying experience. Small diamond kites are lightweight and allow for easy launching with a light steady breeze, even from a seated position. With increased wind, more types of kites can be flown, with team support if needed. Without wind, more types of games can be played. With both kites and games in motion, more people can be served. Our next adaptive games program will be at Holyoke Heritage State Park in downtown Holyoke on Saturday, May 19 from 1-3pm. For further information and to pre-register, contact Heidi Marie-Peterson at 413-577-3840 or heidi.marie-peterson@state.ma.us. We hope to see you there, and if not, the most important thing is to just get out there (even on a gray day!) and enjoy yourself!